Danielle Hake, 18, feeds herself cut-up, fried wontons in her Newberry Township, Pa., bedroom on Friday, Feb. 7, 2014. Because of Danielle's extreme special needs, her mother and home health aide allow her to feed herself only certain food items, as she might eat other foods too quickly and choke. Danielle suffers from chronic static encephalopathy, severe autism, focal epilepsy and abnormal thermoregulation. Although she is 18 years old, she functions mentally at a toddler level and is nonverbal.
Danielle Hake, 18, can be seen sleeping in her largely unfurnished bedroom via a live feed on Friday, Feb. 7, 2014. Danielle's parents years ago hooked up a camera inside her bedroom and keep monitors in the dining area and their own bedroom, to make sure Danielle is safe even after she retreats to her room and slams the door. Her bedroom has no furniture or sharp-edged items to prevent accidental self-injury. Danielle's parents, Alan Hake and Tina Leese, have constantly adapted to meet their daughter's needs, but they are unsure who will provide Danielle with the 24-hour care she requires after they are gone.
Tina Leese, right, helps restrain her daughter Danielle Hake, 18, as Dr. Kevin St. John performs a regular checkup at Wheatlyn Family Medicine in East Manchester Township on Tuesday, Sept. 10, 2013. A Jan. 2014 doctor's note requesting nursing assistance stated that "Danielle's physical size, strength and tactile defensiveness make it impossible to manage her without two adults present."
Danielle Hake, 18, bites herself on the wrist as her mother Tina Leese tries to feed her lunch in the family's Newberry Township home on Thursday, Sept. 5, 2013. Because Danielle is nonverbal, one of her ways of expressing frustration or anger is biting her wrists, upper arms or knees.
Danielle Hake, 18, is mesmerized by the "Sesame Street" clips playing on her Playskool MP3 player while wearing her padded "bite shirt" and "bite pants" made by her mother, Tina Leese, on Friday, Jan. 31, 2014. Danielle, who is nonverbal, bites her wrists, upper arms and knees in shows of frustration, prompting Leese to sew layers of towels and denim to the outside of her clothing to prevent injury from Danielle's biting.
After a 20-minute ride, Danielle Hake, 18, has "snuggle time" with her therapy horse Edgar at Leg Up Farm in East Manchester Township on Friday, Dec. 20, 2013. Most horse therapy clients help brush their horses after their ride, but because of her extreme special needs, Danielle nuzzles the horse afterwards instead.
Danielle Hake, 18, squints and pulls away as her mother, Tina Leese, gives her a haircut on Friday, Dec. 20, 2013. Leese has always cut her daughter's hair, and tries to keep it short so Danielle's head is kept cool.
Tina Leese, right, holds a plate of spaghetti lunch in one hand while using the other to wipe her daughter Danielle Hake's nose as Danielle succumbs to an emotional breakdown due to her menstrual cycle on Friday, Jan. 31, 2014, in her Newberry Township bedroom.
Danielle Hake, 18, right, grabs at her mother Tina Leese's hair as Leese tries to work on a project in their Newberry Township home on Friday, Jan. 31, 2014. Hake, who is nonverbal and often resorts to biting herself as a show of frustration, tends to seek attention from others by grabbing arms or hair.
Alan Hake and Tina Leese sit back in their easy chairs shortly after Alan returned home from work on Friday, Jan. 31, 2014. Their daughter Danielle Hake, who suffers from chronic static encephalopathy, severe autism and other conditions, had shut herself in her bedroom at the time, leaving her parents a quiet moment with the family's German shepherd, Jake.
Danielle Hake, 18, center, reaches to her mother Tina Leese at 5 a.m. on Friday, Feb. 7, 2014, shortly after her father Alan Hake, far left, arrived home from an overnight shift laying down carpet. The family had lost power several days prior after an ice storm wiped out electricity for much of York County, and had gone three days on a generator, unable to take showers or do much else in the dark. Danielle had been waking at 4 a.m. for the past week even before the power outage, and running laps in her room and the house.
Danielle Hake, 18, plays with shaving gel foam on the shower door as Bayada Home Health Care aide Mary Lou Updegrove washes her on Friday, Dec. 20, 2013, in Danielle's Newberry Township home. Danielle's mother, Tina Leese, came up with the idea of spraying shaving gel onto the shower door to keep her occupied while someone else scrubs her.
Danielle Hake, 18, takes a drink from her sippy cup as she plays with her Kindle tablet from behind a baby gate in her family's Newberry Township home on Sunday, Dec. 22, 2013. The baby gate separates Danielle's parents' bedroom, the bathroom and the laundry machines from the rest of the home. Danielle's mother temporarily shut her on the other side of the gate in order to install her Christmas present without Danielle hanging around. "I might not be the best mom but I'm the best for Danielle," Leese said. "I'm all she got."